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Resources
PEI BC Screening Program (self refer) 1-888-592-9888 PEI Cancer Patient Navigator QEH Self Refer 902-894-2552 or cancerpatientnavigator@ihis.org The PEI BC Support Group (Charlottetown) meet in person the first Monday of each month 2 pm unless it falls on a holiday and is held the following Monday; call group contact Judy 902-569-3496 OR: charlottetownbreastcancersg@mail.com CBCN recently published a blogpost to help patients when reading new breast cancer research. The post is a compiled a list of common terms used in various breast cancer news articles to help explain how they are used in determining the results and progress of clinical trials and research. Access the Facebook post here and feel welcome to share it with your contacts: https://www.facebook.com/theCBCN/posts/4931521296902546 New publications by CBCN 2022 : Booklet for the NEWLY diagnosed; booklet for those with Metastatic BC; can be read on line on the CBCN website, or call or email for a free copy to be mailed to you via Canada Post. Canadian Breast Cancer Network | Réseau canadien du cancer du sein Nova Scotia hosts an annual retreat for those with or have had breast cancer; for only $75. including meals and accommodation and a "theme". Location: Debert Hospitality Centre, 130 Ventura Drive, Debert, NS Pre-gister: 902-222-6643 or email: breastcancerretreatns@gmail.com; website: www.nsbreastcancerretreat.ca Always a wonderful event mainly organized by volunteers in a facility that is a wonderful venue with wonderful meals...educational, fun and worth attending! http://www.nsbreastcancerretreat.ca CBCN: Canadian Breast Cancer Network PEI CBCN Board Contact: Judy 902-569-3496 The Canadian Breast Cancer Network is Canada's ONLY patient-directed National health charity. The organization is able to help support patients by connecting them with information to better understand their diagnosis and treatment options including those living with Metastatic Breast Cancer; in addition, CBCN provides navigation for patients and families to connect them to financial resources, help find community supports and address any challenges in accessing breast cancer treatments. During the Covid pandemic staff are able to respond so do not hesitate to make contact. You can reach CBCN by emailing cbcn@cbcn.ca or calling 1-800-865-8820 CBCN's Blog: www.cbcn.ca/ourvoices or Facebook/thecbcn or twitter@cbcn www.cbcn.ca/our-campaigns Intimacy After Breast Cancer is a free day long workshop developed by Dr. Sally Ann Kydd. Feedback on the workshop has been positive as it provides an educational Power Point presentation, a safe space to share and is interactive. Contact CBCN or Judy (1-902-569-3496) to arrange to have this workshop in your community. http://www.cbcn.ca Knights Cabin Facebook: 1. Knight's Cabin and Dr. Iris Lesser, a certified exercise physiologist and researcher who's research has allowed us to better understand how physical activity in nature helps anxiety among cancer survivors. Who: The webinar is designed for cancer survivors and their loved ones or caregivers. What: You will explore the mental and physical benefits of exercise for cancer survivors, navigate the basics of how to become more active based on the principles of behaviour change, and explore how to be innovative in your physical activity looking at the additional benefits of physical activity in nature. When: (if you cannot attend live, we will email the recorded webinar to all registrants after the event) Why: Physical activity is one of the most effective medications on the market for both mental and physical well-being in cancer survivors. To Register: https://knightscabin.com/events/lets-talk-exercise-cancer-trhjn 2. Cancer is expensive & Covid-19 has become an added burden for many families. Knight’s Cabin has partnered with ATB’s Emerging leaders Network on two free webinars designed to help cancer survivors and their families through financially challenging times so they can focus on what matters most: their health and wellness. Who: This webinar is designed for cancer survivors and their families but could be beneficial to anyone. What: The first webinar will walk you through the myriad of government assistance programs being offered due to covid-19 and will provide guidance on how to access them. The second will provide tips and tricks to navigate financially stressful times and equip you with additional tools for long-term success. (if you cannot attend live, we will email the recorded webinar to all registrants after the event) To Register: https://knightscabin.com/events/personal-finances-amp-covid-19-webinar-series-wsksz Katie Sevalrud Executive Director katie@knightscabin.com | Knight's Cabin Cancer Retreats Facebook: Knight's Cabin Twitter: @knightscabin Instagram: @knightscabin http://knightscabin.com PEI Lymphedema Support Group Rose Goulet hosts this meeting each 2nd Sunday of the month 11:30 am - 1 pm unless weather conditions cancel school. Open to anyone with the condition of lymphedema.- or an interest in how to prevent the condition. Call Rose if further info needed at 902-940-6780 Founded in 2022. Venue: Carriage House Beaconsfield, 2 Kent St., Charlottetown, PE Lymphedema Association of Ontario (LAO) The LOA is working to improve access to quality lymphedema information, resources and services. They are striving for quality of life for people who are living with lymphedema and working to increase knowledge of how to prevent it for people who are at risk for developing lymphedema. For more information contact http://www.lymphontario.ca/ Healing and Cancer Foundation Dr. Rob Rutledge, who is a Radiation Oncologist/Associate Professor of Medicine provides a set of six “Healing Program’ lectures outlining everything women need to do to maximize their chance of recovery from a breast cancer diagnosis. Couples Retreats are held periodically. For more information contact Dr. Rutledge at 902-489-6423 or email www.healingandcancer.org PEI Womens Wellness Program and Sexual Health Services The PEI Women's Wellness Progam provides reproductive and sexual health services for all genders, orientations and ages. It also provides information on Pap Screening, Cervical Cancer Prevention and Breast Screening. Clinics are held during business hours each week day, 8 am - 4 pm. Due to the global Pandemic Covid19 social distancing is implemented and phone lines may be busy so re-call may be necessary. For more information contact: 1-844-365-8258 PEI Lennox Island Health Centre A Community Health Centre located on Lennox Island. Charlene Palmer is the Community Health Nurse and can be contacted by calling: 1-902-831-2711. Ovarian Cancer Provides one-on-one support and “By Your Side Guide” for women living with Ovarian Cancer. For more information contact Ovarian Cancer Canada, 1542 Queen Street, Halifax, N.S. B3J 2HB OR Call 1-902--404-7070, toll free 1-866-825-0788 PEI Contact: S. Argent 902-314-5755 www.ovariancanada.org http://www.ovariancanada.org Rethink Breast Cancer A charity helping young people who are concerned about and affected by breast cancer through innovative breast cancer education, research and support programs including those living with MBC http://www.rethinkbreastcancer.com 50 Carroll Street., Toronto, Ontario 416-220-0700 or hello@rethinkbreastcancer.com http://rethinkbreastcancer.com Lesbians and Cancer An information hub for lesbians, bisexual women, partners, friends and families affected by cancer. http://wwwlesbiansandcancer.com Canadian Hospice/Palliative Care The Canadian Hospice Palliative Care Association is the national voice for hospice palliative care in Canada and their mission is the pursuit of excellence in care for persons living with life limiting conditions and/or approaching end of life. Contact 1-800-668-2785, ext. 229 or visit their web site at www.chpca.net/ The Quality End-of-Life Care Coalition Canada believe that all Canadians have the right to quality end-of-life care that allows them to live as flly as possible and die with dignity, free of pain, surrounded by loved ones in the setting of their choice. For more information call 1-613-241-3663, toll-free 1-800-668-2785, ext. 229 or visit their website at www.qelccc.ca or PEI REP: Judy 902-569-3496 PEI Hospice Association has over 300 volunteers who assist/provide time/effort/talent to assisting those with life limiting conditions and/or facing end of life; usually within the home, hospital or the Provincial Health Care facility including the Health PEI Palliative Care Facility, Charlottetown. A variety of activities assisted by Hospice volunteers include Music Care, Integrated Complementary Health Care such as Therapeutic Touch® (2-3 minutes) and no touch required, flower arranging, animal visitation (dogs, cat, horse)craft/art sessions. Further information and/or assistance, to volunteer or donate, contact Hospice PEI: 902-368-4498 hpca@hospicepei.ca (Hospice PEI is a not for profit so appreciates all donations) Library Books The PEIBCIP has provided books and videos related to breast cancer to the Provincial Library system. For more information on these resources or other library programs, visit www.library.pe.ca Charlottetown Library Learning Centre: 902-368-4642 (if you care to donate a non fiction book it must not be older than two years if science related from publication) The Charlottetown Breast Cancer Support Group has a self-service book case with a variety of good information/contacts located at the Church of the Nazarene, Woodlawn Road. A very good resource is The Intelligent Patient Guide to Breast Cancer 6th ed. 2018 by Canadian doctors: Ivo Olivetti, Karen Gelman, David McCready, Urge Kursk. The Lennox Island Health Centre have books and periodicals (self-service) you are welcome to borrow. Canadian Lymphedema Framework The Canadian Lymphedema Framework (CLF) @ canadalymph is an academic and patient stakeholder collaboration, which is part of an international initiative to promote research, best practices and lymphedema clinical development worldwide.Our Vision: Comprehensive effective treatment for lymphedema and related disorders will be accessible to all persons across Canada. The Canadian Lymphedema Framework was proud to host the 2019 National Lymphedema Conference, which was held in Toronto November 1-2, 2019 at the Toronto Airport Marriott Hotel. Over the course of two days, patients and health professionals shared stimulating ideas, new research and innovative solutions to the many issues faced by people who live with lymphedema as well as the health professionals who provide their care. You can read our 2019 Conference Review, originally published in our Winter 2020 issue of Pathways magazine, here. You can also visit our conference website to find out more. We hope to see you next time! CONTACT US Canadian Lymphedema Framework 4800 Dundas Street W, Suite 204 Toronto, Ontario M9A 1B1 Canada Phone: (1) 647-693-1083 Email: admin@canadalymph.ca Charitable Registration Number 85160 1260 RR0001 OUR MISSION The Canadian Lymphedema Framework (CLF) will work to improve the management of lymphedema and related disorders in Canada. OUR VISION Comprehensive effective treatment for lymphedema and related disorders will be accessible to all persons across Canada. http://Canadian Lymphedema Framework Dense Breasts Canada.ca https://densebreastscanada.ca Dense breasts can decrease the effectiveness of mammography and increase your risk for breast cancer. Learn how you can minimize your risk. The Government of PEI has legislated that the per centage category of A, B, C, or D of dense breast tissue will be contained within the mammograph report to the client (as of 2019; if in the C or D category follow up by an ultra sound is recommended though current protocol in PEI remains a follow up mammograph each year if D category, and every two years for C. Dense Breasts Canada was founded by Jennie Dale, Ontario due to the large number of women who were unaware of the importance of knowing the tissue density of ones breasts. http://https://densebreastscanada.ca wellspring.ca Wellspring continues to offer support services in NS and PEI on-line - do not hesitate to be in touch as they hope to eventually offer programs in person. www.wellspring.ca http://www.wellspring.ca |
